It's been quite awhile since I've written here. I can't believe how fast time is flying. Monday Jamie turned 11 weeks. This means that next week he'll be three months old. He is developing quite the personality. One of my favorite times of the day is early morning. After I feed him, he'll sit in my lap and stare at me. When I smile at him or talk to him, he gets a huge grin on his face and smiles at me. Then he'll proceed to answer me with coos and little sounds like he's trying to speak. It is so cute. What is not so cute is the fact that he doesn't sleep through the night yet. This last week we've had some progress with a few nights where he slept 4 hours straight. Last night though, he was up every hour. Typically the schedule is awake every 2 hours to eat. I don't know what his deal was last night.
Jake had his 2nd surgery to remove what was left of the cyst. Instead of an out patient proceedure with the possibility of an over night stay, surgery lasted 9 hours and Jake spent 3 days in ICU and one day in a Neuro unit before he could come home. It was more intensive then they thought. The cyst wore away many of the bones in his inner ear including the section of bone alongside his brain. With the help of a neurosurgeon, his ENT doctor got rid of it and had to move his facial nerve to get at everything. They operated on the bone next to his brain and he had a CSF leak which they had to patch with belly fat. Luckily for Jake, he has been deaf in that ear since childhood, so after surgery, having what was left of the damaged hearing bones removed had little to no impact on him including his equilibrium and balance capabilities.
Mostly Jake is tired and suffering from terrible headaches. The doctors expect that he'll start to really feel like himself in three months post surgery. He is sometimes irritable, sometimes emotional, and sometimes he has good days. It is frustrating for him...with a physical injury like a broken leg, you can see and feel progress and know what to expect. But with this...there is nothing to see and everything physically works and seems in order. He has many restrictions too which keep him from being active. No lifting, no exercise...take it easy. He's been off of work for weeks since driving makes him ill and he can't do things like mow the lawn so it makes him feel worthless. Which he isn't!!! But it is hard. Especially since he's a go-getter who is interested in a lot of things. A Jake of all trades. :-)
We've been watching a lot of television, Jake, James, and I. :-) It's terrible but when Jake doesn't feel well, there isn't much we can do. It is nice having him around though, despite the circumstances (although I've let the housework pile up) and I am glad he is able to hang out with Jamie more. Speaking of which, it's just about feeding time.
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